Hi everyone Brylee is doing well. Since he had his adenoids out back in March his oxygen levels have improved significantly. We have been cleared to take him off oxygen. Even at night! We are so excited to achieve this milestone. Brylee continues to reach other milestones as well. He is getting where he wants to go by rolling and scooting all over the room. He will call out “mama” if someone is holding him and he wants to come back to us. He has 5 teeth on the top and 3 on the bottom. They are sharp and he loves to try them out on anything that enters his mouth, even our fingers! His therapy sessions are going well and his therapists are pleased with his progress.

3-31-2012

Hi, Brylee is doing well. He had surgery Monday to get his adenoids taken out, all went well. We are hoping that this will open up his airway and allow him to come off the oxygen. He is also growing and has finally hit the growth chart.  He is 16 lbs. and 27 inches long at 15 1/2 months. WAHOOO! We are so proud of our little man! He is rolling all over the place and really going after the things he wants. He can sit up by himself for a short period of time to play with a toy placed in front of him. All his labs have been coming back stable, his kidney doctors are very happy with where he is.

2-12-2012

Hi, Brylee is doing well!! He is holding steady with his health. Because he is doing so well his doctors have allowed us to go to once a month labs. We are very excited about this for him. He is still on oxygen but has spent the day time off of it this weekend. His doctors have scheduled some test trying to find out why he is still needing O2. He had a heart ultrasound which came back that his heart is very strong! He had a PH probe test which determines how much reflux he might be having; it came back showing only one episode of reflux. We still have two more tests to go through, a sleep study and a triple scope. We should have this complete by the end of the month.

This Christmas, grandma spoiled him rotten with the help of his aunt Debbie and cousin Jessie. Brylee got to spend some time with his sisters, and we got new family pictures. Everyone looks great and it is a thrill to have Brylee is the pictures.