Hi, Brylee is doing well!! He is holding steady with his health. Because he is doing so well his doctors have allowed us to go to once a month labs. We are very excited about this for him. He is still on oxygen but has spent the day time off of it this weekend. His doctors have scheduled some test trying to find out why he is still needing O2. He had a heart ultrasound which came back that his heart is very strong! He had a PH probe test which determines how much reflux he might be having; it came back showing only one episode of reflux. We still have two more tests to go through, a sleep study and a triple scope. We should have this complete by the end of the month.
This Christmas, grandma spoiled him rotten with the help of his aunt Debbie and cousin Jessie. Brylee got to spend some time with his sisters, and we got new family pictures. Everyone looks great and it is a thrill to have Brylee is the pictures.
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